Friday, September 30, 2011

Sneak Peak

A month or so ago, I wrote about my husband going and setting up his feeders and cameras to get prepared for deer season.  In this part of the country, deer archery season opens October 1st.  There will be many hunting widows that will either be looking forward to or dreading this weekend.

For me, I look forward to deer season.  But maybe that is because it's fall.  And it means cooler weather, Halloween, crunching leaves, football, and family time.

A couple of weeks ago, the hubby went up and copied the pictures off of his trail cameras.
I want to share some of them.  If he has his way, one or more of these big bucks will be gracing my living room walls in the future.



We have nicknamed this little guy Hollywood.  He makes several appearance in the pictures, both daytime and nighttime.  He is awfully cute and super interested in the camera.



My oldest daughter, Ashleigh, will be going and taking her Hunter's Safety Course this weekend.  She is looking forward to officially being able to hunt with dad this year.  I hope she knows that if she shoots one, she has to clean it.  Don't know if dad broke that news to her yet.

Since my freezer is getting rather empty, I am sure glad hunting season starts tomorrow. 

Good luck to all the hunter's this season.  I wish you well in your treks and journeys as you seek your prey.  Be careful and take the appropriate safety measures as well.

To all my fellow hunting widows, I hope you have awesome adventures and activities planned for yourself and/or your children.  That's what I do.  It helps to keep us all sane!!


Monday, September 26, 2011

Bring on the Bubblewrap

I am having a strange time coming to grips with Johnny's hemophilia diagnosis.  It doesn't change who he is or that he is my little boy forever, but it changes the way I watch him play.

I have 2 boys.  My oldest is 16.  I always had the laid back approach to parenting him.  At the park, I would stand back and let him run and climb and jump and slide.  I would only help him if he needed help.  I didn't hover.  Eric was never really the dare devil type though.  He didn't climbed trees too often.  He didn't stand on the kitchen counters.  He didn't do balance beam acts on the back of the bleachers at the ball field.  He did like to climb up on our tractor shed, but nothing else too dangerous.

Johnny has been all boy since his feet hit the floor.  He climbed everything.  He jumped off of everything.  He hit his head on everything.  And then he would look like this.

Only this one is mild compared to some of the others. 

Of course we never took him to the doctor for any of these.  He's a boy.  He's supposed to be banged up.  He's healthy and active.  He gets a good hit on the head at least once or twice a year.

But now I know, he probably should have gone into the doctor for these.  Only the pediatrician is not the one we would have needed to see.  She would have told me pretty much what we were already thinking.

Here comes the guilt...

All these things that have happened to him in his 5 years of life
  • slipping on the bleachers and biting both sides of tongue (it bled for 3 months before it finally healed)
  • falling off the bleachers (multiple times)
  • getting hit in the head with a ceiling fan
  • landing head first on a linoleum floor
  • biting through his lower lip

All of these should have landed us in the ER, or at least a trip to the Hemophilia Treatment Center.  Looking back now and knowing this makes me feel a bit sick to my stomach.  I am glad that something really bad didn't happen.

But now that I KNOW, I just want to wrap my little boy in bubble wrap and keep him safe.

He was officially diagnosed with mild hemophilia A, which is a factor 8 (VIII) deficiency, about 3 weeks ago.  Hemophilia is a rare genetic bleeding/clotting disorder.  So that means his blood is slower to clot.  He doesn't bleed more or faster, but he does bleed longer.  Cuts and scrapes are really no biggie, but deep muscle bruises, head injuries, broken bones, etc need to be treated.

The day AFTER he was diagnosed, I found him standing in the window of my van.  The window was down and he had his feet in the window and he was leaning against the top part of the door (it was closed).  Get DOWN child!  You are killing me.  Later that same night, I found him on the next to top rail of the bleachers at the high school football game, leaning over them cheering.  Since then, he has repeatedly climbed over the chain link fence, scaled the picket fence, walked on the tables in the parish hall after church, stands on the back of the toilet, on the kitchen counter tops, on the bathroom counter, he has cut himself with an exacto knife, I found him making lemonade out of real lemons ALONE (including cutting them all up), using the top seat of the bleachers as a balancing beam.  I am sure there are more things that he has done that luckily I have not seen or witnessed. 

Have I mentioned the boy is only 5. 

Is the need for bubblewrap now apparent?

I am really struggling to find the balance of just letting him be and keeping him safe.








I know I didn't start this blog to be a medical journey, but I am going to add another tab on the top to keep all these in one easy to find place.  Ok well that is as soon as I remember how to do it.


Tuesday, September 6, 2011

Lessons learned at the ballpark - pt 3

Compassion.  I saw the most wonderful lesson in compassion tonight at the ball park.

Life is crazy busy for us right now.  4 of the 5 kids are involved in sports.  Most nights we have things overlapping.  Dad and I do good dividing up when he is off so one of us is at the most important things, or we split practices.  I will admit there are things we are missing, but we are relying on some great people that are willing to help out with getting our kids where they need to be.  Vary rarely do we miss a game.

Tonight, Ashleigh, the oldest daughter, had a double header; Brandy, the middle daughter, had practice; and Johnny had a game.  We tagged up and watched the 1st of Ashleigh's games.  The original plan was I was going to the practice and daddy was going to Johnny's game.  I made arrangements for Brandy to get to and from practice so we both got to go see Johnny play, even if we were a few minutes late. 

I am glad I did that.  Johnny's coaches showed so much class and compassion for another little boy, that I am proud that I got to see it.  Someday, when Johnny is old enough to fully understand, I will tell him about this moment.

The 2 teams playing are both tee-ballers.  Our team is a little bit older.  Most of our boys are 5 to 6 years old.  Their team seemed very inexperienced and young.  Most of them appeared to be between 4 and 5, with maybe even a few 3 year olds sprinkled in.

One of the best things in tee-ball is that most parents cheer the loudest for the smaller players on either team.  It's so cute to watch the little ones hit their hardest and run as fast as their little legs can go.  Imagine how far away those bases must look to them?

I first noticed one of the little boys when he was playing catcher.  I was admiring his tiny little hands.  He was such a dainty thing!  He was so cute later going up to bat.  His batting helmet made him look like a bobble head.  His coach handed him his bat and he took it in one hand and tried to grip it with the other.  He then just held on with his one good hand and balanced it a bit with his wrist.  He swung with all his might, missed and came back and tapped the ball.  It trickled off the tee.  It slowly rolled out of the batter's box and just barely made it into fair territory. 

All the parents jump up and tell him to run.  He runs as fast as his awkward stride will allow.  Our catcher runs out and scoops up the ball and easily throws it to 1st base.  1st baseman gets the ball right in front of the base.  The coaches are yelling to NOT tag the base.  The little boy trips and falls and lands on the base line.  1st baseman is still holding the ball, really confused, but he heard the coaches yell throw it to 3rd, so he did.  The little one gets back on his feet and runs to 1st.  Both sets of fans are cheering and clapping.

Our coach goes out to the pitcher, 2nd base (Johnny), and short stop and tells them no matter what, that that little boy is going to score.  They are not to get him out.  The kids don't quite understand, but go with it. 

Next hit, Little Boy runs from 1st and stops about half way to second.  With some encouragement he continues on and jumps on the bag.  Next hit, he goes from 2nd and heads towards the pitchers mound.  The umps, now realizing what we are doing, helps guide him to 3rd base.  On the next hit, the ball lands between the pitcher and the catcher.  Following the instructions of the coach, the catcher picks it up and throws it to 1st.  Little Boy runs home and scores amid wild cheering from both sides.

After the game, I went up and told the coach that she showed a lot of class.  My husband told me later that the other coach was so shocked by our actions.  No other team had let Little Boy get beyond 1st base. 

Little Boy has cerebal palsy.  He is never going to be the all-star baseball player.  But he got to know the joy of scoring a run.  The joy of hearing the crowd cheer (and loudly) just for him.  He got to have his moment to shine like the true star that he is.  I hope his parents got a picture or video to show him and help him remember.

I applaud his parents for letting him play baseball even though he has physical limitations that prevent him from being able to fully participate.  I applaud the parents in the stands for recognizing this special moment and cheering for him.  I applaud our coach for realizing this moment and allowing our boys to learn to have compassion for others (even though right now they are probably way too young to know what kind of impact they had on someone else's life).  

And I thank the coach for teaching our boys that baseball isn't just about winning games.